Eleanor had her birthday yesterday!
Eleanor turned 3 years old!
Published by Faithforeleanor
This is a blog for those who would like to follow our miracle girl, Eleanor Faith. Eleanor’s primary (but not only) diagnoses are: 1. Schizencephaly (2nd rarest brain malformation- missing 2/3 of her brain) 2. A large brain cyst 3. No Corpus Collosum (the band of nerves connecting left & right hemispheres of the brain so that they work together- vital for anything requiring coordination- ie holding anything with both hands, walking, etc etc) 4. Hydrocephalus (water on the brain) 5. Bilateral Anophthalmia (no eye balls- completely blind) 6. Septo optic dysplasia (no optic nerves & etc) She was also diagnosed with Holoprosencephaly (another rare brain malformation where the left and right hemispheres of the brain failed to divide in utero), but this diagnosis has been removed from her medical file because of brain growth & development that occurred after she was 4 mo old. At this time, her brain also miraculously grew from less than 1/3 of a brain to almost an entire brain (with only tiny portion still missing). She has also developed about 1/3 of her Corpus Collosum (previously she had none). Around 8mo old, she also developed secondary Craniosynostosis (all of her skull sutures fused prematurely) due to medical malpractice by her surgeon. This caused her head to be misshapen & she required a craniotomy to allow room for her brain growth. Eleanor was not expected to survive birth, but at 2 years old, she is thriving, happy, & filled with spunk! She was fearfully & wonderfully made by God. Eleanor is loved & adored by her family just as she is. 😍 You are invited to follow her journey! View more posts
8 thoughts on “Eleanor turned 3 years old!”
So beautiful! Happy Birthday!!!🎈
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What a precious little girl. She is I am sure very special to Jesus. Love you Eleanor
She is so beautiful. God bless your family.
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Eleanor is so pretty! I love seeing her grow up she is so precious and special I love how spunky she is! Thank you for sharing!
Eleanor is so beautiful, precious and spunky! Thank you for sharing! Happy Birthday Eleanor 🍰🎈🎉🎁
Happy birthday to your beautiful smiley little girl🥰🎂🎈🎊
Happy 3rd birthday to Eleanor! What a beautiful princess she is!
Can’t believe how big Eleanor is getting! What a special Little girl she is!!